Several weeks ago we made the decision to have our sweet girl's surgery at Seattle Children's Hospital. What is still unknown is exactly what procedure will be done and when. We had another echo cardiogram done a couple of weeks ago so the Seattle team could make their decision based on the latest data. Bottom line, the echo shows us that Noelle's heart is getting slowly but progressively worse as she grows (nothing new here) and down the road she most likely will need a valve replacement (this was a new and rather scary discussion). It has been nearly a year since the MRI that confirmed the need for another surgery and I am growing weary of the wait and all the unknowns. I just want to get it done and over with so Noelle can just be a normal kid and we can make normal summer plans.
On a side note, after watching her cousin at gymnastics practice a few weeks ago, Noelle has been begging to start gymnastics next year. We have seen more jumping and twirling and cartwheel attempts than ever around our house. The tough thing is that I can't guarantee her that she can do gymnastics until we know the results of her surgery. Her cardiologist has never restricted any of her activities up to this point but on our last visit when I asked him about gymnastics he didn't exactly say no but he didn't say yes either. It may seem like a minor thing but it made me feel sad that there was a possibility of things she will not be allowed to do in the future. As a parent I don't think anyone wants to limit their child's dreams in any way. We want to tell our kids, hey, the sky is the limit, go for it! I hope we can continue to say that to our special girl!
Wednesday, May 27, 2009
Tuesday, May 26, 2009
Where Do I Begin? An Update of Sorts
I have been so busy finishing up the school year, hanging out with dear friends and planting our massive garden that I have neglected this whole blog thing terribly! Here's what has been going on lately in pictures:
Joel's baby sister was the beautiful bride! It seems like just yesterday that she was one of my bridesmaids!
Sportin' our fancy red shoes! No one fell or even tripped, it was a miracle! Standing next to me is Joel's brother's girlfriend. She is such a lovely person inside and out. I love her to pieces!
My children are "helping" grandma decorate the reception hall.
My little guy was the Red Bird from "Brown Bear, Brown Bear".
Then he received his certificate for completing his first year of preschool! My big boy!
My cutiepatootie Kindergarten field trip group!
We REALLY liked this little rental tractor... too bad it's not ours! I even got to drive it which was great until the dumb thing popped out of gear, I couldn't figure out how to stop it and then I nearly ran over my husband! My farmer hero dove out of the way then leaped onto the tractor to save the day as I panicked! It was a bit of a Lucille Ball moment. So very dignified.
This monster of a garden is approximately 1 acre. Whew!
A fabulously fun wedding (I only have pics of the rehearsal... I need someone in the family to take pity and send me their pictures of the actual wedding as I was too busy being IN the wedding to take any!)...
Sportin' our fancy red shoes! No one fell or even tripped, it was a miracle! Standing next to me is Joel's brother's girlfriend. She is such a lovely person inside and out. I love her to pieces!
My children are "helping" grandma decorate the reception hall.
A trip to Point Defiance Zoo
A preschool play and a kindergarten field trip
My little guy was the Red Bird from "Brown Bear, Brown Bear".
Then he received his certificate for completing his first year of preschool! My big boy!
My cutiepatootie Kindergarten field trip group!
Farmin'
We REALLY liked this little rental tractor... too bad it's not ours! I even got to drive it which was great until the dumb thing popped out of gear, I couldn't figure out how to stop it and then I nearly ran over my husband! My farmer hero dove out of the way then leaped onto the tractor to save the day as I panicked! It was a bit of a Lucille Ball moment. So very dignified.
This monster of a garden is approximately 1 acre. Whew!
Labels:
family stuff,
farm,
Kids,
Organic farming,
School,
vacation
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